I received my transplant on Sunday the 27th of October 2019 at 3.30 am. I got a call at 5pm Philly time. Had set up with Angel Med Flight team and they got me to Des Moines in 4.5 hours. Could not ever have happened without your website !
Thank you so much for putting up this website. I cannot thank you enough, because of your website i managed to receive a kidney transplant from Iowa Methodist in less than 90 days of becoming active on their list. I had been enduring dialysis waiting for a kidney in Chicago IL for about a couple of years. I always took my notebook computer with me to dialysis to keep me busy... being fed up one day i started a google search and came across your webpage. Lo and behold here i am transplanted all because of your work.
My wife received her call from Iowa Methodist [Aug 2016]; her wait time was right at 2 months. I cannot thank you enough for the work you have done on your site. We flew to Iowa in a private jet that was donated from a business owner in our town. Thanks again for all you do to get the word out. We are forever grateful. Here is our story.
We have been hearing about this amazing web site finally a patient a few months ago gave us the link. You are offering a great service for patients.
Just a follow on my venture for the past couple of months. After viewing your list, I contacted Iowa Methodist. Two weeks later they scheduled me for an evaluation. Two weeks later they accepted me into their Program. We moved to Des Moines two weeks ago and I received my Transplant Yesterday [May 2016] after being on their list for 2 weeks. Thank you very much for your research. My heartfelt Appreciation for you and your dedication for the transplant patients
Thank you again for all you do! As a social worker I am a believer in patient choice and I am glad you are helping folks know more about what their options really are.
Because of your site I have contacted and gone to Iowa Methodist Transplant Center [March 2015] and got transplanted there [June 2015]. I would not have known about this place had it not been for you. I think your site is great and a vast improvement of info now available opposed to 20 years ago
Thank you very much, Irene. Your website no doubt will help thousands of people!!
I was on the list in Chicago. I self dialyzed for a year, sticking dialysis needles into my left arm with my right hand.
I've done a lot of research and found your website on the internet.
I have relocated to Iowa and was determined to stay there until the call or the money runs out. I got the call and was transplanted.
I've just celebrated 4 year transplant anniversary and my creatinine is 1.0. You might've saved my life.
The great news is that I just received a transplant from Johns Hopkins three weeks ago [March 2016]. I owe you a great deal. If not for your information, I would have stuck to the three NYC area hospitals (8-13 year waits). Instead, I searched for reasonable OPO's, and all were a pretty good bet (U of Vermont, Hopkins, and Cleveland Clinic Florida). I ended up with the most incredible world class hospital. Unbelievable experience. Thank you - profusely - for your amazing work, research, website, and our communications. You've done an amazing service.
I was transplanted at Plaza Medical Center in Ft Worth TX [November 2015] after being on the list two and a half months. This would NOT have happened without your website. My wife and I truly appreciate your contribution to our new life.
My father received a kidney through the Des Moines hospital [June 2016] - he has just been smiling a lot more, and has much more hope for his future. You have made such a difference in our lives. Thank you so very much for all the incredible information you shared, your generosity of time and insight and for all your compassion and caring.
My transplant was done by the excellent team at the University of Nebraska Medical Center [Aug 2018]. Life is indeed grand.
My wife received a kidney at Iowa Methodist Transplant Center [Sep 2018]. Transplant was successful and Kidney is functioning. We would both like to thank you for your web site. Her 2nd kidney provides new life style. It was very expensive flight but worth every penny.
I guess $13,500 [to hire a private jet ] sounds like a lot of money until your life depends on it. You have me excited to get started.
The information on the site is helping me feel a little bit more in control which is very comforting.
I can not thank you enough for the website that you created. I was transplanted last weekend [October 2018] and already feel a big different in my life. The words I have can not say more than enough thank you to you for creating this website and guiding me to the right place to get listed. I had signed up for Angel Med Flight but I had gotten a few calls before so I moved out to Des Miones a week before my transplant and then they called me. the Angel Med Flight experience signing up with them was easy and great you call sign a contract and they take care of the rest for you and they follow up to make sure your still active on the list.
As a dialysis social worker in an area with 10+ year waiting lists for transplant, I just want to thank you for all your hard work on this website. It is a tool I just recently discovered and now share with my patients on a regular basis to help them find other centers to be listed at. I have previously suggested to patients that they look into centers outside our area without seeing much interest, but being able to show them the map on the reduce wait tab has really enabled them to SEE the difference and the possibilities! I just recently started referring more patients to various centers of their choosing outside the Los Angeles area and I can't wait to see how many patients are able to get a transplant more quickly because of it. Thank you
Your website is fascinating,
I can't get over all the details!
I can't thank you enough for this website. It was so difficult to grasp how the transplant system worked and how to get information about wait times, etc. After finding this website, I have so much more clarity about what direction to take and what to expect. Ultimately, I have more hope during this uncertain time of waiting.
I am very excited to move forward in finding a Kidney after my nephrologist at Washington Nephrology Associates shared with me this website last week. I only wish he would have done it earlier.
I stumbled upon your site and found it very useful in my planning.
Without your website, I wouldn't even consider to list on the Nebraska Transplant Center. My only regret is I should have known your website sooner. I am sure that many pre-transplant patients like me will benefit from your website.
I've received my transplant on Sep 11, 2018 at Iowa Methodist in Des Moines. I was very sick prior to transplant, started to have mini-strokes and my blood pressure skyrocketed over 200. In New Jersey, wait for transplant is over 5 years and I thought I would not last another year. Your website helped me realize there are other places I could list at. Angel Med Flight picked me up and flew me to Iowa (there are no commercial flights from New Jersey). They were very nice and caring. Thank you for saving my life!
Thank you for your site. I've received my transplant, my second birthday and a new life on Aug 10, 2018 at Nebraska Medical Center. I was registered at 3 centers (Omaha, Kansas, St Louis) and thought based on the site that Nebraska will be the shortest wait. That is exactly what happened.
Thank you so very much for your work with this website. The information is invaluable and close to impossible to get any other place.
Hello from Nebraska! We finally got the call Sunday and after flight delays made it to Omaha 1:45 am. My husband had his surgery [July 2019] and is in recovery now. I cannot thank you enough for being part of my journey. Keep up the great work you do.
This is a GREAT website! I wish this was around when we first got my husband listed in the transplant system 5 years ago.
I enjoyed reading your site and found your Q and A to be some of the most informative I've ever read
I've essentially been discouraged from being multiply listed, and starting to become very concerned about my future. I am very interested in doing something to move things along. It's almost like playing slots in Vegas: the house always wins. I hope you can provide some insight into how this game is supposed to be played. I appreciate any assistance you can provide. Congratulations on your win.
Hats off to you Irene for your sophisticated, informative and easy to navigate website.
The doctor told me 8 years, i told him come talk to me when you are sober.